Customer Rating: 
Summary: informative
Comment: This book has some really great info that you can't find other places. A real must for anyone dx with or close to someone dx with "iron overload".
Customer Rating:
Summary: Nothing more you need to know.
Comment: This book was recommended by a friend when my 26 year old son was diagnosed with hemachromatosis, before I even knew my husband and I are both carriers. I ended up getting two of my sons (2 of my 3 have hemachromatosis)a copy. It relieved a lot of fears and answered a lot of questions, questions that my family doctor didn't know the answer to. It also gave us direction as to what to do and what to expect. Very easy to read, very easy to understand.
Customer Rating:
Summary: Excellent
Comment: This book should be much easier to find.The information is badly needed.If it were more accessable more people would see the symtoms and perhaps get better diagnosis. All doctors need this in their offices. My gastrointerologist said he'd have to do some research on this!!! He's suppose to be the "specialist"!This has helped me understand that with proper diagnosis and treatment this disease need not be a serious problem. Well written. A must read. Many thanks to Dr. Phatak for writing this.
Customer Rating:
Summary: solid information for people with this problem
Comment: Finally, there is definitive information out there, instead of just people passing word of mouth warnings. This books is worth gold for people of Celtic ancestry. I was diagnosed with HHC, laughingly called the Celtic Curse because it can strike people of Scottish and Irish ancestry, there was not a lot of information out there about it. One in four people can carry the gene that causes the body to store too much iron in the deep muscle tissue, kidneys, liver and heart. It can be fatal if not caught. This book helps those find a way to live with this problem.When I learnt I suffered from this, I had not heard of it, no one I knew had it. However, within in the last five years, many people I know are aware of a friend or family member that now has it. It often mimics many other health problems, so it's good to get early treatment and have books such as this one that help you manage your lifestyle.
This book addresses all the issues and give people a sound understanding of the problem, how to face it and how to live with it.
Customer Rating:
Summary: The Iron Disorders Institute Guide to Hemochromatosis
Comment: At long last, a single source of invaluable information about diagnosis and treatment of Hemochromatosis along with many personal trials and tribulations of those who have experienced the frustrations of obtaining an appropriate diagnosis. "The Iron Disorders Institute's Guide to Hemochromatosis" is a tremendously welcome resource. I was so impressed I purchased 7 additional copies for my 5 adult children and 2 of the RNs who conduct my frequent phlebotomies.I'm also relieved that newly diagnosed "Rusties" do not have to go through the agony of research as I did back in 1979 when I was diagnosed as a result of my younger sister's autopsy results. There was scant information available in the medical journals of the period. I recall one occasion spending more than 4 hours in a medical library only to locate a single 2 year old article about Hemochromatosis, which was replete with statements that have since been proved mythical. No one will have to endure that again with the advent of IDI's "Guide".
The "Web" has certainly provided considerably more accessibility to Hemochromatosis information, yet much of what is available still has to be validated. The "Guide to Hemochromatosis" overcomes this problem by providing in a single-source forthright testimony, easy-to-understand charts and time-tested data contributed by highly recognized scientists in their fields.
The "Guide" can reduce, even eliminate, the frustration often experienced when trying to convince a family member of how crucial it is for having the appropriate blood tests conducted to determine stored iron levels. The feedback I've received from those whom I have given this book to has been overwhelmingly positive. There is little doubt as to the value of this book in one's arsenal for educating loved ones about the insidiousness of excess iron and the damage iron can do to the human body.
I found that one can simply read individual chapters in no particular order and assimilate a plethora of knowledge without being bogged down in technical jargon. This book relates well on a very personal level. I can not emphasize enough the value of this book. It commands a highly visible location in my reading library, replacing the "Reader's Digest".
I also highly recommend this book as being very germane to every individual, worldwide, who has Irish, Scottish, or English ancestry.
